Paediatria Croatica, Vol. 56 No. 4, 2013.
Izvorni znanstveni članak
BREAKING BAD NEWS – INFORMING PARENTS ON SUSPICION OF PRENATALLY DETECTED DOWN SYNDROME IN OBSTETRIC INSTITUTIONS: HUNGARIAN EXPERIENCE
Mate Orsolya
; Department of Nursing, Faculty of Health Sciences, University of Pécs, Pécs, Hungary
Henriette Tigyi
; Department of Health Promotion, Institute of Public Health, Recreation and Health Promotion, Faculty of Health Sciences, University of Pécs, Pécs, Hungary
Zsuzsa Kives
; Department of Public Health and Epidemiology, Institute of Public Health, Recreation and Health Promotion, Faculty of Health Sciences, University of Pécs, Pécs, Hungary
Sandor Janos
; Department of Biostatistics and Epidemiology, Institute of Preventive Medicine, Faculty of Public Health, University of Debrecen, Debrecen, Hungary
J. Mentneki
; National Center for Healthcare Audit and Inspection, Budapest
Sažetak
For health care professionals, breaking bad news postnatally to parents in case of suspected Down syndrome is a difficult task to perform. The aim of the study was to investigate the Hungarian practice as well as deficiencies from the perspective of the physicians providing first information in order to improve the current system. For better interpretability of the results, we compared the practice of providing first information in Hungary (74% national coverage) with 23 obstetric institutions in Germany. In Germany, communication training has already been incorporated into the curriculum of medical and health care higher education. It was found that 95% of the Hungarian and German institutions have no protocol for providing information. In Germany, the professionals get significantly more communication training (p=0.06) and more contact with civil organizations (p<0.01). In Hungary information stressing the negative aspects of the situation is more often given (p=0.024), while less consolation (p=0.017) and printed brochures are provided for parents (p<0.01). Hungarian physicians feel more often (p=0.022) they are not capable of helping the parents. The Hungarian practice of providing information needs improvement. The possible tools for improvement are the introduction of communication training in undergraduate and postgraduate education of health professionals as well as working on and elaborating policies concerning the breaking of bad news.
Ključne riječi
Descriptors: DOWN SYNDROME; PARENTS; COMMUNICATION; TRUTH DISCLOSURE; HUNGARY
Hrčak ID:
98776
URI
Datum izdavanja:
16.12.2012.
Posjeta: 1.070 *