Physiotherapia Croatica, Vol. 20 No. 1, 2022.
Izvorni znanstveni članak
Evaluation of the influence of physiotherapy on quality of life and self-esteem of people with Neurofibromatosis type 1
Silvia Tovernić
; Sisak, Hrvatska
Romana Gjergja Juraški
; Dječja bolnica Srebrnjak, Zagreb
Zlatko Sabol
; Poliklinika za dječje bolesti dr. Sabol, Zagreb
Sažetak
Abstract
Introduction: Neurofibromatosis type 1 (NF1) is an
autosomal dominant genetic disorder which is caused
by the change of the NF1 gene on the 17th chromosome.
The disease occurs equally in both sexes. Likewise, it
can be inherited from one of the parents or it can appear
for the first time in the family as the new change of the
neurofibromatosis type 1 gene.
Aim: The aim of this study was to determine whether
there is a difference in the quality of life among the
neurofibromatosis type 1 patients who have gone
through physiotherapy and the neurofibromatosis type
1 patients who have not gone through physiotherapy.
Materials and methods: The sample includes N=44
respondents. The study used a Short form health
survey-36 for for assessing the health quality of life and
a visually analogous scale of pain.
Results: In the domains of the questionnaire for the
assessment of the health quality of life, the average
satisfaction of respondents in both groups is the highest
in domain of physical functioning (group A: M=56,15,
group B: M=81,45). There is a statistically significant
difference in the degree of pain on the visually analogous
scale of pain scale between groups (p<0,01).
Conclusion: The results of the conducted research
showed good quality of life in both groups of respondents.
The pain perception is higher in NF1 group A, stressing
the need for further introduction of physiotherapy, but
also the recognition of the emotional disturbances and
depression as the cause of pain.
Ključne riječi
neurofibromatosis type 1, quality of life, pain, physiotherapy
Hrčak ID:
285832
URI
Datum izdavanja:
23.5.2022.
Posjeta: 427 *