Acta clinica Croatica, Vol. 58. No. 1., 2019.
Original scientific paper
https://doi.org/10.20471/acc.2019.58.01.01
Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Croatia
Ana Hećimović
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia
Alice Heaney
; Galen Research, Manchester, UK
Stephen P. McKenna
; Galen Research, Manchester, UK
Latinka Basara
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia
Marko Jakopović
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia; School of Medicine, University of Zagreb, Zagreb, Croatia
Andrea Vukić Dugac
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia; School of Medicine, University of Zagreb, Zagreb, Croatia
Gzim Redžepi
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia
Cecilija Rotim
; Dr. Andrija Štampar Teaching Institute of Public Health, Zagreb, Croatia
Miroslav Samaržija
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia; School of Medicine, University of Zagreb, Zagreb, Croatia
Nataša Jokić-Begić
; Faculty of Humanities and Social Science, University of Zagreb, Zagreb, Croatia
Sanja Popović-Grle
; Department for Lung Diseases, Zagreb University Hospital Centre, Zagreb, Croatia; School of Medicine, University of Zagreb, Zagreb, Croatia
Abstract
Pulmonary hypertension (PH) is a chronic disease which severely impairs quality of life (QoL). The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) is the first disease-specific tool to assess patient-reported symptoms, functioning and QoL in PH patients. The aim of this study was to adapt and validate the CAMPHOR for use in Croatia. The adaptation process involved three stages: translation (bilingual and lay panel), cognitive debriefing interviews with patients
and psychometric validation. For the latter stage, a postal survey was conducted with 50 patients to examine the reliability and validity of the adapted scale. All three scales of the Croatian CAMPHOR demonstrated excellent internal consistency (Symptoms = 0.93; Activity limitations =
0.94; QoL = 0.92) and test-retest reliability correlations (Symptoms = 0.90; Activity limitations = 0.95; QoL = 0.90). Predicted correlations with the SF-36 scales provided evidence for construct validity of the CAMPHOR scales. Evidence for known group validity was shown by the ability of the scales to distinguish between participants based on patient-perceived general health and disease severity. The Croatian version of the CAMPHOR is a valid and reliable tool for use in clinical routine and clinical research.
Keywords
Hypertension, pulmonary; Quality of life; Croatia; Reproducibility of results; Surveys and questionnaires
Hrčak ID:
220480
URI
Publication date:
1.3.2019.
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