Izvorni znanstveni članak
https://doi.org/10.21860/j.15.2.2
Qualitative Analysis of the Sensibility of the Social Environment towards Families of Children with Developmental Disabilities and Persons with Disabilities: The Parents' Perspective
Ana Slišković
orcid.org/0000-0002-5621-648X
; Odjel za psihologiju, Sveučilište u Zadru, Zadar, Republika Hrvatska
Jelena Ombla
; Odjel za psihologiju, Sveučilište u Zadru, Zadar, Republika Hrvatska
Andrea Tokić
; Odjel za psihologiju, Sveučilište u Zadru, Zadar, Republika Hrvatska
Sažetak
Caring for children with developmental disabilities and persons with disabilities depletes the psychophysical and other resources of parents and affects their health, so formal and informal support from society is extremely important. Since strengthening the bioethical sensibility of society towards children with developmental disabilities and persons with disabilities is a prerequisite for promoting change at the socio-political level, the main objective of the research was to gain deeper and more detailed insight into the sensibility of the social environment towards families of children with developmental disabilities and persons with disabilities. This was performed by using the experiences and perspectives of parents collected in a research workshop attended by 16 parents of children with developmental difficulties and persons with disabilities (11 mothers and 5 fathers). Data were collected using the guided group discussion method, and a thematic analysis was conducted. Despite the observed positive changes during the last decade, the sensibility of the social environment towards the families of children with developmental disabilities and persons with disabilities is described as insufficient from the parent’s perspective, both at the level of the formal and informal environment. The findings point to a number of practical guidelines aimed at addressing the needs and support of these families: the need to empower parents and families, the need to strengthen the professional competencies and communication skills of professionals, and the need to sensibilize the broader social environment to the demands and challenges in the lives of these families.
Ključne riječi
parenting children with developmental disabilities and persons with disabilities; sensibility of the social environment; formal and informal support
Hrčak ID:
329672
URI
Datum izdavanja:
31.3.2025.
Posjeta: 563 *