Pregledni rad

MULTIDISCIPLINARY MANAGEMENT AND NEUROREHABILITATION OF PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS

HRVOJE BUDINČEVIĆ orcid.org/0000-0002-0184-8949 ; Klinička bolnica Sveti Duh, Klinika za neurologiju. Zavod za cerebrovaskularne bolesti i intenzivnu neurologiju, Zagreb, i Sveučilište Josipa Jurja Strossmayera, Medicinski fakultet u Osijeku, Osijek, Hrvatska
ANITA MARČINKO BUDINČEVIĆ ; Klinička bolnica Sveti Duh, Klinika za neurologiju. Zavod za cerebrovaskularne bolesti i intenzivnu neurologiju, Zagreb, i Sveučilište Josipa Jurja Strossmayera, Medicinski fakultet u Osijeku, Osijek, Hrvatska
MARINA KOS orcid.org/0000-0003-1528-0239 ; Klinička bolnica Sveti Duh, Klinika za neurologiju. Zavod za cerebrovaskularne bolesti i intenzivnu neurologiju, Zagreb, Hrvatska
SANJICA VLAŠIĆ orcid.org/0000-0003-3307-6549 ; Klinička bolnica Sveti Duh, Zavod za fizikalnu medicinu i rehabilitaciju, Zagreb, Hrvatska
JELENA BARTOLOVIĆ orcid.org/0000-0002-3352-5327 ; Zavod za otorinolaringologiju i kirurgiju glave i vrata, Osijek, Hrvatska
SNJEŽANA BENKO orcid.org/0000-0002-4092-9434 ; Klinička bolnica Sveti Duh, Zavod za fizikalnu medicinu i rehabilitaciju, Zagreb, Hrvatska
VEDRAN OSTOJIĆ ; Klinika za unutarnje bolesti, Odjel za kliničku imunologiju, reumatologiju i pulmologiju, Osijek, Hrvatska
SILVA SOLDO BUTKOVIĆ ; Sveučilište Josipa Jurja Strossmayera, Medicinski fakultet u Osijeku, Osijek, i Klinički bolnički centar Osijek, Klinika za neurologiju, Osijek, Hrvatska

Sažetak

Patients with amyotrophic lateral sclerosis require comprehensive care with a multidisciplinary approach, which is individually adjusted to each patient. The goals of neurorehabilitation should be adjusted to the stage of disease. In early stages, physical therapy is focused on preserving and optimizing motor and respiratory function. At this stage, family should be involved to partake in desired activities and be informed regarding the natural course of the disease. In late stages, physical therapy is focused on preventing respiratory complications and contractures, and orthotics may also be recommended. The onset of dysarthria should trigger swallowing and pulmonary function testing. Swallowing maneuvers should be tried at the onset of symptoms, later feeding tubes or percutaneous gastrostomy tube is necessary. Noninvasive mechanical ventilation may delay the need of tracheostomy and invasive mechanical ventilation. The key objectives of multidisciplinary teams are to optimize medical care, facilitate communication, and thus to improve the quality of care and quality of life.

Ključne riječi

neurorehabilitation; amyotrophic lateral sclerosis; management, multidisciplinary approach

Hrčak ID:

165169

URI

https://hrcak.srce.hr/165169

Datum izdavanja:

7.9.2016.

Podaci na drugim jezicima: hrvatski

Posjeta: 4.385 *