Original scientific paper

CHRONIC ILLNESS AND FAMILY: IMPACT OF SCHIZOPHRENIA AND CROHN’S DISEASE ON THE FAMILY QUALITY OF LIFE

Slobodan Loga ; Academy of Sciences and Arts of Bosnia and Herzegovina, Sarajevo, Bosnia and Herzegovina
Bojan Šošić ; Board for Neurological and Psychiatric Research of the Department of Medical Sciences of the Academy of Sciences and Arts of Bosnia and Herzegovina, Sarajevo, Bosnia and Herzegovina
Alma Džubur Kulenović ; Department of Psychiatry, University Clinical Center Sarajevo, University of Sarajevo, Sarajevo, Bosnia and Herzegovina
Emira Švraka ; Faculty of Health Studies, University of Sarajevo, Bosnia and Herzegovina
Nina Bosankić ; Faculty of Arts and Social Sciences, International University of Sarajevo, Sarajevo, Bosnia and Herzegovina
Abdulah Kučukalić ; Department of Psychiatry, University Clinical Center Sarajevo, University of Sarajevo, Sarajevo, Bosnia and Herzegovina
Omer Ćemalović ; Psychiatric Hospital of the Sarajevo Canton, Bosnia and Herzegovina
Alma Hadžić ; Association of Patients with Crohn’s Disease and Ulcerative Colitis, Sarajevo, Bosnia and Herzegovina

Abstract

Background: Quality of life assessments are increasingly present in health research. Chronic and progressive illness of a family
member unavoidably affects quality of life of a family as a whole.The goals of this study were to gain insight into the family burden of
chronic disorders, especially possible differences in family quality of life (FQOL) in families that have members suffering from either
schizophrenia or Crohn’s disease, and families in which none of the members have chronic somatic or mental illness, as well as to
pilot an instrument for this purpose.
Subjects and methods: The sample consisted of 53 families with a member suffering from schizophrenia, 50 families with a
member suffering from Crohn's disease, and 45 families with no identifiable chronic illnesses. An informant from each family
underwent a structured face to face interview, using a questionnaire specially adapted from Family Quality of Life Survey, an
instrument widely used to assess FQOL in families with members with disabilities, and which addresses nine areas of family life.
Results: In the domain of health, both groups of families with chronic illnesses believe they have significantly different conditions
when compared to members of the Control group. In the Crohn's disease group, families had a great deal more of challenges in
accessing healthcare services; and see themselves at a disadvantage when compared to both other groups in the domain of finances.
Control group offered lowest rating in the domain of support from others. Overall measures of FQOL show significant variation
among the three groups, Crohn’s disease group offering lowest ratings, followed by families of mental health service users.
Conclusions: Overall, FQOL seems to be lower in families that have members diagnosed with Crohn’s disease than in families
with members suffering from schizophrenia. Illness-specific studies are required, as well as instruments with stronger psychometric
properties and studies of determinants of FQOL. Qualitative approach should be emphasised when studying FQOL related to
chronic illnesses.

Keywords

Family Quality of Life (FQOL); schizophrenia; Crohn’s disease; chronic mental illness; inflammatory bowel disease

Hrčak ID:

106322

URI

https://hrcak.srce.hr/106322

Publication date:

20.12.2012.

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