Paediatria Croatica, Vol. 62 No. 2, 2018.
Original scientific paper
https://doi.org/10.13112/PC.2018.9
Long-term prognosis of patients with paediatric-onset infl ammatory bowel disease after transfer to adult care – a retrospective observational study
Tena Trbojević
; Klinika za dječje bolesti Zagreb
Lea Miklić
Lana Ivković
Filip Simon
Iva Hojsak
Sanja Kolaček
Abstract
Aim: The aim of this study was to evaluate and report long-term prognosis of infl ammatory bowel disease (IBD) in patients
transferred to adult care.
Methods: We reviewed medical records of all patients treated in our tertiary medical centre and then on adult care for a minimum
of 5 years (median 12.4 years).
Results: During the study period, 52 IBD patients were treated in our centre and 27 patients/families were available for interview
(13 of them women; median age 29 years; 20 with Crohn’s disease and 7 with ulcerative colitis (UC)). Twenty-three (85%) patients
were transferred to adult care, whereas 4 (15%, 3 with UC) patients never consulted an adult gastroenterologist. Nineteen (70%)
patients experienced a relapse, 2 (7.4%) died, and 9 (33%) received biological therapy in adult care. Of the surviving patients, 8 (32%)
underwent surgery in adult age.
Conclusion: This study confi rmed that, in the absence of organized transition to adult care, a number of patients would never
transfer on their own, causing discontinuity of care.
Keywords
infl ammatory bowel disease; long-term prognosis; transfer of care; transition
Hrčak ID:
216948
URI
Publication date:
25.6.2018.
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