Paediatria Croatica, Vol. 63 No. 1, 2019.
Izvorni znanstveni članak
https://doi.org/10.13112/PC.2019.3
A retrospective study on health-related quality of life in congenital clubfoot (with patient-reported outcomes)
Aliz Bohner-Beke
Szilvia Jámbori
Lívia Vass
János Kránicz
Veronika Végh
Henriette Pusztafalvi
Sažetak
When treating clubfoot, doctors prefer objective measurements, while knowing the subjective quality of life of a patient is secondary
rather than observing the two in parallel. The aim was to highlight the significance of patient reporting in the quality of life questionnaires.
This retrospective study included 75 patients with clubfoot (44 boys and 28 girls, mean age 12.45 (range 2-30 years; 3 missing).
The treatment was typical in 55 patients (posteromedial release), while Ponseti method was used in 20 patients. The following
questionnaires
were used: EQ-5D-3L and Clubfoot Disease Specific Instrument for Health Science, Rosenberg Scale for Psychological
Sapiens, and our own sociological questionnaire. The mean EQ-5D index was 0.86 and mean EQ-VAS was 79.92, scoring lower than
the Hungarian population data. According to the results of the special quality of life questionnaire, foot pain and finding shoes that fit
caused the biggest problems for the study patients. The quality of life questionnaire results showed that finding shoes that fit without
exacerbating pain was the biggest problem for study participants. The mean Rosenberg scale score was 22.2 (maximum 30) points.
There were no significant findings in individual cases, however, correlations were found when examining low-self-evaluation participants
in the group. Internal consistency of the instruments employed was appropriate (Cronbach alpha: 0.831-0.939), and combined
questionnaires used to identify each aspect as indicated by the medium and high Spearman correlation values (rs=0.539-0.916).
Ključne riječi
clubfoot; quality of life; patient reported outcome measures
Hrčak ID:
220742
URI
Datum izdavanja:
23.5.2019.
Posjeta: 1.137 *